Who We Are

Welcome to the Huntington's Disease Society of America's (HDSA) Albany Chapter. We are a part of HDSA's Northeast Region. The Albany Chapter began as the Albany NY, Western Massachusetts and Southern Vermont Affiliate in April 2011.

In June 2016, we became the Albany Chapter.

We support anyone affected by HD (patient, caregiver, family, friends, etc.) from the Adirondacks to Westchester County and Utica to Western Massachusetts and Southern Vermont. The majority of our events are in the greater Capital District but we are always exploring new ideas in other areas.

Our Mission

To improve the lives of everyone affected by Huntington's disease and their families. 

Our Vision

A world free of Huntington's disease. 

About HDSA

The Huntington's Disease Society of America (HDSA) is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research, HDSA is the world's leader in providing help for today, hope for tomorrow for people with Huntington's disease and their families. In the battle against Huntington's disease no one fights alone. At HDSA, family is everything.​

HDSA Centers of Excellence


The HDSA Centers of Excellence provide an elite multidisciplinary approach to Huntington's disease care and research.

At these world-class facilities, patients benefit from expert neurologists, psychiatrists, therapists, counselors and other professionals who have deep experience working with families affected by HD and who work collaboratively to help families plan the best HD care program throughout the course of the disease.

For the exact address of each HDSA Center of Excellence, click here for our Locate Resources page 


HDSA Regional Development Officers
Virginia Goolkasian
PO Box 14
Chelmsford, MA 01824
p. (978) 905-5588
e. vgoolkasian@hdsa.org  

Melinda Jensen
p. (212)-242-1968 ext: 236
e. mjensen@hdsa.org