Connect with our local chapter:
Takes place Sunday, November 21st

Saratoga Springs, New York (November 11, 2021) – The Albany Chapter of the Huntington’s Disease Society of America (HDSA) is excited to announce that the chapter will be featured at TrueSongs: Lyrics of Life, an annual event that reveals real life challenges faced by our neighbors. This will take place on Sunday, November 21st at 7:00 PM- Caffe Lena. Other organizations featured include The Charlton School, CREATE Community Studios, Down Syndrome Aim High Resource Center, Wilton Wildlife Preserve & Park, Thoroughbred Retirement Foundation, and Love Child. 

To find the stories, Caffe Lena reached out to local nonprofits that lend a helping hand to people in our community. The storytellers will highlight the positive impact of these organizations. Each storyteller has been paired with a songwriter who will capture the story with lyrics and melodies. At the performance, each pair will take the stage together, and make these true experiences come alive with an artistic presentation that breaks through stereotypes and boundaries. 

Jim Gaudet is the musician has been paired with Joe and Nora Esposito. Joe has served as a member of HDSA’s Albany Chapter and is a caregiver for his wife, Nora. To learn more about their family journey, click here 

“From the first night we met more than twenty years ago, live music has been a central part of our lives,” said Joe Esposito. “Combining live music with the chance to share our story and raise awareness for living with Huntington's Disease has us very excited!” 

For more information about the event, please contact Carolyn Shapiro (carolyn@caffelena.org). Tickets can be found at ALBANY.HDSA.ORG/TRUESONGS 

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Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. Every child of a parent with HD has a 50/50 chance of inheriting the faulty gene. Today, there are approximately 41,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. The symptoms of HD are described as having ALS, Parkinson’s and Alzheimer’s – simultaneously.

The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families. HDSA was founded in 1967 by Marjorie Guthrie, the wife of legendary folk singer Woody Guthrie. Woody died from HD complications when he was only 55 years old, but the Guthrie family legacy lives on at HDSA to this day.

To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call (800)345-HDSA. 

FOR IMMEDIATE RELEASE

Matthew Santamaria

Communications Manager 

(212) 242-1968 ext. 204 

msantamaria@hdsa.org